Single Disease

Parent DTF: Lifespan Integration Domain Task Force

Objective(s):

  • To identify gaps in knowledge and the questions that need to be addressed to identify and bridge gaps in data elements and research opportunities for care, transition and outcomes across the lifespan
  • Lessons from cystic fibrosis and sickle cell disease, focused on transition from adolescence to young adult.

Meeting:  As Needed

Work Groups

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