Filling A Critical Translation Gap: Wake Forest Clinical and Translational Science Institute (CTSI) Collaborates in $2.7M National Study to Empower the Participant Voice

Empowering the Participant Voice

Pioneering initiative will collect and share nationally data on clinical trial participants' perceptions throughout the United States.

WINSTON SALEM, NOVEMBER 16, 2020: Wake Forest School of Medicine will serve as one of six sites nationally for the study Empowering the Participant Voice: Collaborative Infrastructure and Validated Tools for Collecting Participant Feedback to Improve the Clinical Research Enterprise (PAR-19-099, 1-U01- TR003206).  The study is supported by the National Center for Advancing Translational Sciences (NCATS) as part of the national Clinical and Translational Science Award (CTSA) collaborative. This study will:

  • Utilize the Research Participant Perception Survey (RPPS), a breakthrough validated instrument for rapid collection of participant feedback through REDCap.
  • Establish a collaborative analytics dashboard to evaluate participant feedback data from across the nation.
  • Broadly disseminate the RPPS tool, making it available to other CTSA institutions, a network of 50+ academic medical centers, as well as the broader community of REDCap users.

Read more about this national collaboration with fellow CTSAs Vanderbilt University, Johns Hopkins University, Duke University, University of Rochester, and leading institution, Rockefeller University.

Publishing CTSA Program Hub’s Name
CTSA Program In Action Goals
Goal 2: Engage Patients and Communities in Every Phase of the Translational Process
Goal 4: Innovate Processes to Increase the Quality and Efficiency of Translational Research, Particularly of Multisite Trials