To better understand the roles and experiences of community stakeholders and partners in CTSAs.
Clinical Translation Science Awards (CTSAs) provide infrastructure to enhance community engaged research across the entire translational spectrum. Community stakeholders/partners are essential to assisting CTSAs build infrastructure to support and nurture community engaged research.
The goal of this survey was to better understand the roles and experiences of community stakeholders and partners in CTSAs. Hubs were asked to provide names of community partners that they wished to send a companion survey. Thirty-one hubs provided information for at least one community partner, but the majority (10) provided information for 5 community partners. Several hubs expressed discomfort at having CLIC contact their community partners directly and requested that their partners complete the survey via public survey link, which they were provided. The names of 99 community partners were provided to CLIC to receive the companion survey and of those 36 responded. Five additional responses were submitted via anonymous public survey link for a total of 41 respondents and an overall community partner response rate of 39.4%. The companion survey was sent out in batches as names were submitted starting on 10/14/19 and data collection for the companion survey ended on 11/15/19.
The survey included three open-ended items about why they chose to partner with the CTSA Program hub, how they felt about their relationship, and to provide any additional comments they may have. The text responses were coded multiple times, via an open read through and then broken down into core themes. Text responses were independently coded by a minimum of two coders, who agreed on the theme or themes present in the response. The majority of the community partners indicated that they partnered with the hub because they thought the hub had expertise that would be beneficial to the community (n=12) or because they thought their community expertise would be beneficial to the hub (n=7). This was further supported by a majority of respondents (n=15) indicating that their relationship with the CTSA program hub was “collaborative/mutually beneficial.”
Please log in to access this content