Center for Data to Health
May 30, 2023The N3Connect Bulletin aims to inform, connect, and engage members of the N3C community. The bulletin includes updates on community events, news, important announcements, and opportunities for involvement, as well as stories and profiles about N3C community members and their achievements. To join the N3Connect Bulletin mailing list, please visit https://bit.ly/JoinN3Connect
May 22, 2023The White House Office of Science and Technology Policy (OSTP) released comprehensive new recommendations to promote user data privacy for both public and private sector entities, focusing on mitigating bias and maximizing efficiency in an equitable way. The “National Strategy to Advance Privacy-Preserving Data Sharing and Analytics1” establishes clear objectives to aid the research, development
-Center for Data to HealthTowards Examining the Impact of COVID-19 on Oral Healthcare with Ye Lin and Chen Liang: People affected by COVID-19 may be at elevated risk for oral conditions whereas the causes are not clear. The Oral Health Domain Team strives to understand the impact of COVID-19 and Long COVID on the clinical progression, outcomes, and treatment optimization for dental patients. Our prioritized research will
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Temporal Trends in Rural-Urban COVID-19 Therapies and Outcomes from Alpha to Omicron with Jerrod Anzalone: After an initial urban wave, the COVID-19 pandemic has disproportionately impacted rural communities. The N3C Rural Health Domain Team (https://covid.cd2h.org/rural-health) will present recent work examining temporal trends in rural-urban differences in frontline COVID-19 therapies and
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April 27, 2023
The N3Connect Bulletin aims to inform, connect, and engage members of the N3C community. The bulletin includes updates on community events, news, important announcements, and opportunities for involvement, as well as stories and profiles about N3C community members and their achievements. To join the N3Connect Bulletin mailing list, please visit https://bit.ly/JoinN3Connect
-Center for Data to HealthArtificial Intelligence and other Data Science approaches have shown the potential to transform healthcare in recent years. Novel algorithms can now improve the interpretation of images, expedite diagnoses, suggest medications, and predict the development of diseases or complications. Availability of cancer-related diverse data sets including EHR, Genomics, PROs, Claims, Wearable, Imaging via the
-Center for Data to HealthOver the past year, N3C's Data Ingestion & Harmonization Team has developed two scorecards that will be sent to all 77 released sites on a biweekly basis. The site-specific scorecard will return data quality metrics and feedback for the individual site while the site comparison scorecard will return data quality metrics and feedback of that site compared to the rest of the sites in either the OMOP
Center for Data to HealthNCATSA National CTSA Coordinating Center that established a foundation to provide access to medical record data, innovative tools, and a diverse group of researchers are foundational to achieve equity through the science of translation! The CTSA Community has created a number of innovative resources to facilitate national coordination of translational research and enable health equity, diversity and
-Center for Data to HealthDr. Melissa Haendel and Dr. Jakob Seidlitz will present "2022 DataWorks! Grand Prize Winners: Innovations in Data Sharing and Reuse" at the monthly Data Sharing and Reuse Seminar on March 10, 2023 at 12 p.m. EDT.
January 04, 2023Malnutrition significantly increased the risk of mortality and adverse hospital events in patients hospitalized with COVID-19. In the United States, current estimates suggest that 20-50% of hospitalized patients have malnutrition. Malnutrition is a condition that develops when the body lacks sufficient vitamins, minerals and other nutrients needed to maintain healthy tissues and organ function. In
-Center for Data to HealthThe N3Community Forum is a place to learn about new COVID-related studies, papers, and opportunities. This event is held on a weekly basis and features one to two presentations from members of the N3C community on selected topics regarding their work with N3C. Each presentation is followed by a discussion session open to participants. Monday, October 31, 2022 at 2pm-3pm PT / 5pm-6pm ET 1st Topic
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-Center for Data to HealthThe N3Community Forum is a place to learn about new COVID-related studies, papers, and opportunities. This event is held on a weekly basis and features one to two presentations from members of the N3C community on selected topics regarding their work with N3C. Each presentation is followed by a discussion session open to participants. Monday, November 14, 2022 at 2pm-3pm PT / 5pm-6pm ET with Sula
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-Center for Data to HealthThe N3Community Forum is a place to learn about new COVID-related studies, papers, and opportunities. This event is held on a weekly basis and features one to two presentations from members of the N3C community on selected topics regarding their work with N3C. Each presentation is followed by a discussion session open to participants. Monday, October 24 at 2pm-3pm PT / 5pm-6pm ET with Jim Phuong
Center for Data to HealthAccess to medical record data, innovative tools, and a diverse group of researchers are foundational to achieve equity through the science of translation! The CTSA Community has created a number of innovative resources to facilitate translational research and enable health equity, diversity and SDoH inclusion in research. The Center for Data to Health’s infrastructure and community coordination
July 29, 2022With over 10,000 known rare diseases collectively affecting nearly 10% of the population, rare disease patient populations represent unique and varied cohorts for the study of COVID. It can be challenging to identify rare diseases in medical record data but efforts are underway to address those issues. Bryan Laraway and Melissa Haendel presented initial exploratory findings from their work to
May 26, 2022SDoH are the non-clinical covariates of how people live, grow, learn and age and relates to how people manage stressors or prevent worsening health outcomes. Progressively, data about patient-level SDoH are collected using clinical screening tools for social needs and social risk factors. CD2H has led multiple SDoH synergistic initiatives relating to overall improvement of SDoH encoding and
March 30, 2022The National Center for Data to Health’s National COVID Cohort Collaborative (N3C) Data Enclave houses the largest repository of COVID-19 data in the United States, with more than 4.5 million COVID+ patients. The N3C Data Enclave contains harmonized clinical data provided by more than 70 contributing health care institutions and consists of more than 14 billion rows of clinical information. The
-Center for Data to HealthSage Bionetworks, in collaboration with Medical College of Wisconsin (MCW) and Mayo Clinic, will present NLPSandbox.io with Hongfang Liu, PhD and Thomas Schaffter, MSc, PhD. The CD2H NLP Sandbox is an open platform for benchmarking modular natural language processing (NLP) tools on both public and private datasets. Academics, students, and industry professionals are invited to browse the available-
June 14, 2021N3C Orientation Sessions A & B will now be offered just once-per-month (once for session A and once for session B). Sessions A & B will continue to alternate on a rotating basis. View the N3C Calendar for scheduled days and times. Previously recorded sessions can still be accessed on demand on the N3C Presentations & Webinars page of the website.
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June 08, 2021Hongfang Liu, PhD, leader of the National COVID Cohort Collaborative (N3C) Natural Language Processing (NLP) Subgroup, has created a process for extracting important variables from the free text or unstructured portion of the electronic health record (EHR). Liu’s process will allow researchers to test their algorithm on data provided by the N3C to see how well it can de-identify unstructured data
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June 07, 2021The N3C article authored by Noha Sharafeldin, MD, PhD, MSc, et al has been published in the Journal of Clinical Oncology. The authors assembled the largest nationally representative cohort of patients with cancer and COVID-19 to date and identified demographic and clinical factors associated with increased all-cause mortality in patients with cancer. See Outcomes of COVID-19 in Patients With
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-Center for Data to HealthThe CD2H Biobank Incubator project being developed by the Next Generation Data Sharing Core will demonstrate the BioCatalyst platform on Weds June 23, 2021 at 10amPT/1pm ET. BioCatalyst is a first-of-its-kind search engine/application that allows biobanks to connect both clinical attributes and biological/molecular data to existing biospecimens in a central, easy-to-use virtual ecosystem. As of
-Center for Data to HealthThe PMWC virtual conference takes place this year from June 14th through June 18th. Day 2, June 15th, will feature the following presentation under Track 2: AI & Data Science. This session will summarize the collective experience of several national organizations in dealing with uncoordinated efforts that result in unnecessary delays in understanding, predicting, preparing for, containing, and-
May 26, 2021If you missed the webinar on Weds May 13th presented by Kenneth Gersing, MD, Director of Informatics NCATS DCI entitled Studying COVID-19 Using Real-World Data: Lessons Learned and Steps Forward After One Year of the National COVID Cohort Collaborative (N3C), you can now access the recording. Topics include: • Lessons learned after one year of studying COVID-19 using real-world data • Future
-Center for Data to HealthNoha Sharafeldin, MBBCh, MSc, PhD co-leads the Oncology Domain Team of the National COVID Cohort Collaborative (N3C). Dr. Sharafeldin will present the abstract titled: Outcomes of COVID-19 in Cancer Patients: Report From the National COVID Cohort Collaborative (N3C) at the American Society of Clinical Oncology (ASCO) annual meeting. The oral abstract is part of the Care Delivery and Regulatory-
May 06, 2021For the past year, researchers have been pursuing possibilities for the repurposing of existing drugs that can effectively disrupt COVID-19 disease processes. Electronic health record (EHR) data from the N3C Data Enclave were used to produce a recent preprint published in medRxiv on April 6, 2021 titled Drug repositioning candidates identified using in-silico quasi-quantum molecular simulation
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-Center for Data to HealthNot sure how to go about identifying which patients in the N3C Data Enclave have had COVID-19? Want to get your COVID+ patient counts to match the numbers on the Enclave homepage dashboard? The Enclave Users’ Group (EUG) has been created as a community-focused forum where members can share practical information on techniques, tips, and methods in the N3C Data Enclave. Each session will have one or
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Center for Data to Health
The attached files are provided to the CTSA Program Communications team for use in promoting and communication about the N3C.
-Center for Data to HealthPresented by CyncHealth, InterSystems, the Great Plains IDeA-CTR, Logica Health, the Nebraska Healthcare Collaborative, and the University of Nebraska Medical Center’s Biomedical Informatics Graduate Program. Tuesday, May 11, 2021 | 8:30 AM – 12:30 PM CST 8:30 AM | Introduction to Conference and Topics -James McClay, MD, MS, Director, GP IDeA-CTR Biomedical Informatics Core 9:00 AM | The Vision of
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April 12, 2021
It has been well-documented that racial disparities exist in the incidence rates of people diagnosed with HIV. And separately, with the emergence of the COVID-19 pandemic, the prevalence of the Non-Hispanic (NH) Black and Hispanic people being disproportionately diagnosed with the virus, and suffering higher mortality rates has also been a disturbing trend. A new study looked at the potential