Center for Data to Health

  • Hongfang Liu, PhD, leader of the National COVID Cohort Collaborative (N3C) Natural Language Processing (NLP) Subgroup, has created a process for extracting important variables from the free text or unstructured portion of the electronic health record (EHR). Liu’s process will allow researchers to test their algorithm on data provided by the N3C to see how well it can de-identify unstructured data
  • The N3C article authored by Noha Sharafeldin, MD, PhD, MSc, et al has been published in the Journal of Clinical Oncology. The authors assembled the largest nationally representative cohort of patients with cancer and COVID-19 to date and identified demographic and clinical factors associated with increased all-cause mortality in patients with cancer. See Outcomes of COVID-19 in Patients With
  • CD2H-teal
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    Center for Data to Health
    The CD2H Biobank Incubator project being developed by the Next Generation Data Sharing Core will demonstrate the BioCatalyst platform on Weds June 23, 2021 at 10amPT/1pm ET. BioCatalyst is a first-of-its-kind search engine/application that allows biobanks to connect both clinical attributes and biological/molecular data to existing biospecimens in a central, easy-to-use virtual ecosystem. As of
  • Precision Medicine World Conference (PMWC)
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    Center for Data to Health
    The PMWC virtual conference takes place this year from June 14th through June 18th. Day 2, June 15th, will feature the following presentation under Track 2: AI & Data Science. This session will summarize the collective experience of several national organizations in dealing with uncoordinated efforts that result in unnecessary delays in understanding, predicting, preparing for, containing, and
  • If you missed the webinar on Weds May 13th presented by Kenneth Gersing, MD, Director of Informatics NCATS DCI entitled Studying COVID-19 Using Real-World Data: Lessons Learned and Steps Forward After One Year of the National COVID Cohort Collaborative (N3C), you can now access the recording. Topics include: • Lessons learned after one year of studying COVID-19 using real-world data • Future
  • ASCO 2021
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    Center for Data to Health
    Noha Sharafeldin, MBBCh, MSc, PhD co-leads the Oncology Domain Team of the National COVID Cohort Collaborative (N3C). Dr. Sharafeldin will present the abstract titled: Outcomes of COVID-19 in Cancer Patients: Report From the National COVID Cohort Collaborative (N3C) at the American Society of Clinical Oncology (ASCO) annual meeting. The oral abstract is part of the Care Delivery and Regulatory
  • For the past year, researchers have been pursuing possibilities for the repurposing of existing drugs that can effectively disrupt COVID-19 disease processes. Electronic health record (EHR) data from the N3C Data Enclave were used to produce a recent preprint published in medRxiv on April 6, 2021 titled Drug repositioning candidates identified using in-silico quasi-quantum molecular simulation
  • National COVID Cohort Collaborative (N3C)
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    Center for Data to Health
    Not sure how to go about identifying which patients in the N3C Data Enclave have had COVID-19? Want to get your COVID+ patient counts to match the numbers on the Enclave homepage dashboard? The Enclave Users’ Group (EUG) has been created as a community-focused forum where members can share practical information on techniques, tips, and methods in the N3C Data Enclave. Each session will have one or
  • Center for Data to Health

    The attached files are provided to the CTSA Program Communications team for use in promoting and communication about the N3C.

  • Great Plains IDeA & CTR logo
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    Center for Data to Health

    Presented by CyncHealth, InterSystems, the Great Plains IDeA-CTR, Logica Health, the Nebraska Healthcare Collaborative, and the University of Nebraska Medical Center’s Biomedical Informatics Graduate Program. Tuesday, May 11, 2021 | 8:30 AM – 12:30 PM CST 8:30 AM | Introduction to Conference and Topics -James McClay, MD, MS, Director, GP IDeA-CTR Biomedical Informatics Core 9:00 AM | The Vision of

  • It has been well-documented that racial disparities exist in the incidence rates of people diagnosed with HIV. And separately, with the emergence of the COVID-19 pandemic, the prevalence of the Non-Hispanic (NH) Black and Hispanic people being disproportionately diagnosed with the virus, and suffering higher mortality rates has also been a disturbing trend. A new study looked at the potential

  • Penn State CTSI logo
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    Center for Data to Health
    Finding the right dataset can sometimes be a challenge in data science. A new initiative will provide Penn State researchers with access to a trove of COVID-19 data, updated frequently by health care systems around the United States. Penn State faculty can learn how to get access to the database and what data is included at a Data Science Community talk at 1 p.m. on Thursday, April 15. Advance
  • Read the latest N3C preprint now published in medRxiv by authors: Joy Alamgir, Masanao Yajima, Rosa Ergas, Xinci Chen, Nicholas Hill, Naved Munir, Mohsan Saeed, Kenneth Gersing, Melissa Haendel, Christopher Chute, Ruhul Abid. Background: Drug repositioning is a key component of COVID-19 pandemic response, through identification of existing drugs that can effectively disrupt COVID-19 disease

  • The month of April marks the one-year anniversary for the creation of the National COVID Cohort Collaborative (N3C) infrastructure. The N3C was built in just a few short months and is a testament to the dedication of the informatics community to fight the pandemic. The N3C mobilized the expertise of the community to create a national data repository, and was able to open the Enclave to the general
  • National COVID Cohort Collaborative (N3C)
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    Center for Data to Health
    Are your analyses running slower than you’d like, now that N3C is host to over 5 billion rows of data? In this webinar Saad Ljazouli of Palantir will cover a variety of techniques to keep your analyses running smoothly, ranging from tips for Contour to techniques for Code Workbooks that leverage features of Apache Spark such as broadcast joins. These techniques will be demonstrated on notional
  • Melissa A. Haendel, PhD, has been named Chief Research Informatics Officer (CRIO) for the University of Colorado Anschutz Medical Campus, a newly created position responsible for transforming the campus use of information and information systems to accelerate biomedical discoveries, streamline health system operations, and continuously improve patient care. The CRIO office will lead efforts to
  • The National COVID Cohort Collaborative (N3C) continues to grow as a robust EHR data resource, now with over 3 million persons represented and 4 billion rows of data from more than 42 sites. Currently, 24 multidisciplinary Domain Teams composed of clinical and subject matter experts, statisticians, informaticists, and machine learning specialists are addressing the most pressing clinical questions
  • The Cohort Exploration Dashboard is now available on the home page of the N3C website. This easy access dashboard displays high-level information from the N3C Data Enclave to showcase harmonized metrics from electronic health records of institutions across the country. You can view geographical locations of contributing sites and distributions across age and sex, race and ethnicity, and
  • Look for the big gold “Ask N3C” button on the far right-hand side of the N3C homepage for full support of all your questions and requests. N3C provides support for ALL types of questions, including account issues, Data Use Request (DUR) status, synthetic data questions, publication submissions, meeting changes, Domain Team support, and so much more! Please submit a ticket for the most expedient
  • They say necessity is the mother of invention. In terms of healthcare, one of the most remarkable inventions begat by the pandemic is something called the National COVID Cohort Collaborative (N3C). The vision of the scientists and researchers behind the N3C is to turn massive amounts of already available data into new knowledge urgently needed to study COVID-19 and identify potential treatments
  • NCATS has provided the FDA with access to the N3C Data Enclave. FDA investigators interested in accessing N3C COVID-19 data must complete appropriate human subjects and NIH security training, review and abide by NCATS technology transfer requirements, and submit a Data Use Request (DUR) detailing their proposed project and use of N3C data. For details on how FDA investigators can access the N3C

  • Researchers have been anxious to learn what variables describe the COVID-19 patient cohort. Using the harmonized data in the N3C Data Enclave from 39 institutions’ electronic health records around the country, collaborators were able to distill this information in the manuscript titled The National COVID Cohort Collaborative: Clinical Characterization and Early Severity Prediction and is now
  • N3C held the first Enclave orientation sessions on February 2nd and 9th to engage users of all types with learning to use the N3C Data Enclave. The sessions were conducted by N3C Training Coordinator Shawn O’Neil and had over 100 participants for each session in attendance. This two-part training course will repeat on an ongoing basis, alternating week by week. To view training information and
  • National  COVID Cohort Collaborative Logo
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    Center for Data to Health
    N3C will hold a 2-part virtual orientation to learn how to use the N3C Data Enclave. These sessions are designed for users of all types. The first 2 sessions will take place in February, and then will alternate week by week for ongoing access. Session A - Recommended before attending Session B This session is for those who want to learn about N3C, as well as how to engage with project teams and
  • The National Institutes of Health COVID-19 NeuroDatabank and NeuroBioBank, funded by the National Institute of Neurological Disorders and Stroke, has been initiated at NYU Langone Health. We will create and maintain a national resource documenting and studying neurological complications of coronavirus disease (COVID-19), the illness caused by infection with the SARS-CoV-2 novel coronavirus

  • Food and Drug Administration
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    Center for Data to Health
    FDA and the Duke-Margolis Center for Health Policy will hold a virtual workshop focused on considerations about observational (non-interventional) study design and conduct when using evidence from observational studies to inform regulatory decisions.   FDA defines real-world evidence (RWE) as the clinical evidence regarding a medical product’s use and potential benefits or risks that is derived
  • View the N3C abstract for the paper The National COVID Cohort Collaborative: Clinical Characterization and Early Severity Prediction published in medRxiv, the preprint server for health sciences. This abstract is a preprint and has not yet been certified by peer review, so should not be used to guide clinical practice at this time. Stay tuned for full article publication! doi: https://doi.org/10
  • Johns Hopkins University
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    Center for Data to Health

    Tragically, the burdens of the COVID-19 pandemic often fall on the most vulnerable members of society. In this symposium, we will engage the broader Johns Hopkins community in a meaningful conversation on various aspects of disparities arising from the COVID-19 pandemic. Join us for an interactive discussion on how data science approaches and methods contribute to better understand, address, and

  • N3C is hosting an Open House to engage CTSA members, newcomers, and the wider translational research community. The event will be kicked off with a one-hour symposium that includes opening remarks from N3C leadership, followed by a PI/Clinician Testimonial with Dr. David Ellison of OCTRI, an N3C Tutorial on how to get involved, a demonstration of the N3C Data Enclave, and flash talks from the

  • National COVID Cohort Collaborative (N3C)
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    Center for Data to Health

    The N3C is the largest collection of electronic health record (EHR) data on COVID-19 patients in the world and is anchored on the OHDSI/OMOP model. This webinar will feature presentations to increase N3C awareness and engagement of nurses, and to identify opportunities and roles relevant to nurse scientists. There will also be a panel discussion involving prominent nurse scientists to address