CCTS 4th Bioethics Forum Explores New Issues in Era of Precision Medicine

Building on previous forums that explored the importance of trust and trustworthiness in research, the 4th CCTS Bioethics Forum focused on new issues raised by the return of results in large population-based clinical and genetic studies. Leading PIs and bioethicists from the Alabama Genomic Health Initiative (AGHI) and the Jackson Heart Study shared lessons learned at the March 2019 event. A special panel discussion featured several AGHI participants. The variability of their experiences and perspectives underscored the complexity of bioethical challenges surrounding the return of results, whether positive or negative.