Research & Operational Tools

The Mid-Atlantic Twin Registry (MATR) is an organization of twins and their families who are willing to consider taking part in twin-based, health-related research. The MATR welcomes twins of any age, ethnicity, and zygosity (identical or fraternal), as well as higher order multiples such as triplets, quadruplets and quintuplets.

From the University of Southern California CTSI, and Children's Hospital Los Angeles:

The digital health landscape is complex, fascinating, and rapidly expanding. Hundreds of relevant resources exist, but are often known only to a subset of individuals within the many different disciplinary silos that comprise the diverse field of digital health.

The attached files are provided to the CTSA Program Communications team for use in promoting and communication about the N3C.

NIH has compiled this list of strategies for communicating science and health research to the public.

The attached doc is guidance for how our hub partners should communicate about N3C efforts

We all know the importance of branding. For your reference, this guide contains brand-approved color palettes, typography, imagery and more.

Looking to encourage members of your hub to get involved on Twitter? Feel free to use and modify this deck, aimed at those who are new to the platform.

Manuscript appearing in the Journal of Clinical and Translational Science, published online April 20, 2021.

The COVIDome Project at the University of Colorado Anschutz Medical Campus is a collaborative multidisciplinary project, led by Joaquin Espinosa, PhD, that aims to accelerate translational research in COVID19 by generating and integrating matched multi-omics and clinical datasets and making them broadly accessible through an online portal ahead of publication.

The Penn State Clinical and Translational Science Institute Team Science Toolbox is designed to:

N3C Domain Teams enable researchers with shared interests to analyze data within the N3C Data Enclave and collaborate more efficiently in a team science environment.

Trials Today, a tool from ResearchMatch and Vanderbilt University, offers prospective research participants a quick way to search the thousands of studies available on ClinicalTrials.gov. By answering a few short questions, Trials Today can help find a list of studies that may interest a prospective participant. The Spanish version of Trials Today is now also live.

About the Program

The popular CIRTification program is now available for implementation at the institutional level. CIRTification is a free, web-based human research protections training program tailored specifically to the needs and roles of community research partners.

Clinical Research Standard Operating Procedures (SOPs) serve as a core set of procedures for research teams and outline uniform best practices. SOPs support quality, efficiency, and compliance across the entire Virginia Commmonwealth University/Virginia Commonwealth University Health clinical research enterprise.

In 2017, the NYU Clinical and Translational Science Institute's Recruitment and Retention Unit created a Patient Advisory Council for Research (PACR) to provide feedback on clinical trials and health research studies.

The Principal INvestigator Development and Resources (PINDAR) program was developed at the NYU-H+H Clinical and Translational Science Award (CTSA) hub in response to a perceived need for focused good clinical practice (GCP) training designed specifically for principal investigators (PIs) performing human subject research.

Guidance for partners and collaborators to communicate about N3C to internal and external audiences. This document contains approved messaging from NCATS to assist with press releases and other outreach efforts.

The Rochester Epidemiology Project (REP) is a collaboration between health care providers in Minnesota and Wisconsin.