Informatics Infrastructure

  • Informatics the Journey Continues logo showing the five areas that make up the series: Data Completeness, Data Quality, Data Standardization, Process Improvement, and Resources
    The Ohio State University (OSU) is on a journey to modernize its research informatics infrastructure by increasing access to clinical data for researchers by adopting a new data classification, integrating research tools into the electronic health record (EHR) for improved care, and deploying general discovery infrastructure all on a governance process that is reliable and transparent.
  • CLIC
    This webcast identifies appropriate personnel for your informatics research team and suggestions for addressing their training needs.
  • CLIC
    The webcast identifies key partners and their importance in improving the Informatics metric.
  • CLIC
    This webcast examines common data quality issues and provides suggestions for correcting them.
  • The webcast provides examples of how data interoperability was used in the N3C program for the COVID-19 pandemic. The first five webcasts are an introduction to informatics, created to build foundational knowledge and to define key terms. We encourage you to watch them in order.
  • Journal of Clinical and Translational Science

    A robust biomedical informatics infrastructure is essential for academic health centers engaged in translational research. There are no templates for what such an infrastructure encompasses or how it is funded. An informatics workgroup within the Clinical and Translational Science Awards network conducted an analysis to identify the scope, governance, and funding of this infrastructure.

  • Researchers at the South Carolina Clinical & Translational Research (SCTR) Institute have developed a novel bioinformatic tool called RINS, the Research Integrated Network of Systems, that can be used to evaluate whether improvements to the clinical trial process are making a difference. Their results, published online on March 17 in the Journal of the American Medical Informatics Association

  • Registered nurse Rachel Pryor had collected 2,000 COVID-19 antibody tests and 2,000 surveys. And she needed to know, in the early weeks of the pandemic, what they said about the risk of the novel coronavirus for health care providers. “The prevalence of antibodies in providers was one way for the health care system, and the community in general, to better understand the prevalence of COVID-19,”
  • University Of Washington

    The Institute of Translational Health Sciences (ITHS) at the University of Washington (UW) maintains a REDCap instance that has seen nearly exponential growth since its inception in 2009, making it one of the largest globally. We've been successful in operating that instance with a modest resource allocation and computational infrastructure. Before the pandemic, we had scaled to nearly 20k

  • The University of Wisconsin Institute for Clinical and Translational Research (UW ICTR) is looking for a Director of Scientific Computing to collaborate with researchers, clinicians, informaticians, IT teams, and external partners and to develop state-of-the-art computing environments at the UW School of Medicine and Public Health (SMPH). Under the direction of the Chief of Biomedical Informatics

  • The National Center for Advancing Translational Sciences (NCATS) and the National Center for Data to Health (CD2H) announce the launch of the National COVID Cohort Collaborative (N3C) Data Enclave. NIH also made a news release on Wednesday September 2, 2020. Faced with the urgent need to address the global pandemic, subject matter experts from the Clinical and Translational Science Awards (CTSA)

  • Researchers at Washington University are using synthetic data to accelerate COVID-19 research and facilitate collaboration among healthcare institutions.

  • LITTLE ROCK — A national database for patient cancer images at the University of Arkansas for Medical Sciences (UAMS) will become the storage site for COVID-19 clinical images from across the United States and around the globe, including chest x-rays and CT scans of the body. This week, UAMS also became the first research institution to contribute de-identified images of COVID-19 to the storage

  • Images summarizing the findings of the Penn State abstract Translation of Despair and Healthcare
    Pennsylvania State Univ Hershey Med Ctr

    In a seminal paper, Case and Deaton (2015) described a growing phenomenon, “diseases of despair” –namely drug overdose, suicide, and alcoholic liver disease--that underlies the first-ever decline in life expectancy in the U.S. and that disproportionately affects white non-Hispanic Americans and those living in rural communities. Addressing conditions within the health system alone ignores that