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The Mid-Atlantic Twin Registry (MATR) is an organization of twins and their families who are willing to consider taking part in twin-based, health-related research. The MATR welcomes twins of any age, ethnicity, and zygosity (identical or fraternal), as well as higher order multiples such as triplets, quadruplets and quintuplets.
The National Institutes of Health COVID-19 NeuroDatabank and NeuroBioBank, funded by the National Institute of Neurological Disorders and Stroke, has been initiated at NYU Langone Health. We will create and maintain a national resource documenting and studying neurological complications of coronavirus disease (COVID-19), the illness caused by infection with the SARS-CoV-2 novel coronavirus
Join the CD2H InvenioRDM team for their biweekly open-hour discussion! At this upcoming session, you’ll learn about results of early user testing on InvenioRDM’s development. You’ll also hear about the Invenio community, including resources, opportunities for collaboration, and the role of the Community Manager—your helpful navigator in the world of Invenio, and gain insights into work on an
The National COVID Cohort Collaborative (N3C) is a partnership among the Clinical and Translational Science Awards (CTSA) Program hubs, distributed clinical data networks (PCORnet, OHDSI, ACT/i2b2, TriNetX), and other partner organizations. The N3C aims to create a national COVID-19 resource of harmonized row-level (e.g. patient-level) EHR data and provision it via a secure enclave for
Over the last year+ with support from the National Center for Data to Health (CD2H), and in partnership with CERN, we have collaboratively developed InvenioRDM, an integrated, born-interoperable repository and data catalog to empower researchers to engage in best practices around research data management, sharing, and reuse of digital artifacts and data at their hubs. Good news! We’ve started to
Office of Science and Technology Policy (OSTP) is seeking public comments on a draft set of desirable characteristics of data repositories used to locate, manage, share, and use data resulting from Federally funded research. Comment period closes 3/6/2020. Make your voice heard!