NIH COVID-19 NeuroDatabank and NeuroBioBank

NeuroCOVID

The National Institutes of Health COVID-19 NeuroDatabank and NeuroBioBank, funded by the National Institute of Neurological Disorders and Stroke, has been initiated at NYU Langone Health. We will create and maintain a national resource documenting and studying neurological complications of coronavirus disease (COVID-19), the illness caused by infection with the SARS-CoV-2 novel coronavirus. Together, these efforts comprise the NeuroCOVID Project.

The NeuroCOVID Project will encompass a REDCap database, the NeuroDatabank, to receive and store information on patients who have COVID-19, and a biorepository, the NeuroBioBank, to receive, track, store, and distribute biosamples from patients who have COVID-19.

The NeuroDatabank will include de-identified patient data; individuals will be identified only by a globally unique identifier (GUID) to ensure that no protected health information is transmitted to the NeuroDatabank. The GUID will enable de-identified linkage of individual participants' data, linkage of maternal and child data, and linkage to patients' specimens in the NeuroBiobank.

Publishing CTSA Program Hub’s Name
CTSA Program In Action Goals
Goal 5: Advance the Use of Cutting-Edge Informatics