NIH COVID-19 NeuroDatabank and NeuroBioBank
The National Institutes of Health COVID-19 NeuroDatabank and NeuroBioBank, funded by the National Institute of Neurological Disorders and Stroke, has been initiated at NYU Langone Health. We will create and maintain a national resource documenting and studying neurological complications of coronavirus disease (COVID-19), the illness caused by infection with the SARS-CoV-2 novel coronavirus. Together, these efforts comprise the NeuroCOVID Project.
The NeuroCOVID Project will encompass a REDCap database, the NeuroDatabank, to receive and store information on patients who have COVID-19, and a biorepository, the NeuroBioBank, to receive, track, store, and distribute biosamples from patients who have COVID-19.
The NeuroDatabank will include de-identified patient data; individuals will be identified only by a globally unique identifier (GUID) to ensure that no protected health information is transmitted to the NeuroDatabank. The GUID will enable de-identified linkage of individual participants' data, linkage of maternal and child data, and linkage to patients' specimens in the NeuroBiobank.